Video

Epidermolysis Bullosa (EB) is a rare genetic skin disorder. EB is not contagious. People with EB are called Butterflies because their skin is as delicate as a Butterflies Wings. Their skin tears very easily and blisters are always present. In 2006 the US Government finally recognized EB as a condition which needs more attention and declared the last week of October from now on, National EB Awareness Week. To learn more about EB and how you might be able to help please visit www.debra.org and www.ebkids.org and see the facts. Please help!